Saturday, July 16, 2011
I never thought I'd be sharing my story...
Hi! My name is Aryanna. I'm 15 years old and completely new to this blogging thing. I have a life long syndrome called Ehlers-Danlos (EDS). Here's the basic layout of it: My joints are too loose. I have "faulty collagen" as the doctors like to say. This means that my joints don't stay where they are supposed to. As a result, every single one of my joints dislocate-- or come out of place. You can probably imagine how painful it is when your shoulder dislocates from merely moving it. It isn't a fun syndrome to have. I look perfectly "normal" on the outside. Unfortunately, this causes disbelief from many people-- including doctors. Although EDS is a (literal) pain in the neck...I survive. I have many goals that I want to achieve. That's what I've decided to base this blog on. So please continue to read as I share my goals with you. Some goals I know I'll never be able to reach. Some I am so close to accomplishing, I can taste it on my tongue. EDS is a huge weight to carry but it cannot crush me, because I can lift it.
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You are one of the strongest people I know! You have such an amazing personality, you are so true to all your friends, you are beautiful and so talented. You inspire me each day to be a better person. I am always here anytime you need me. If you can't be strong sometimes you have me to lean on! I love you!!
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