Sunday, July 17, 2011
My goal for today:
My goal for today was to drag myself away from the amazing book I had the pleasure of reading. I bought the book late afternoon yesterday, and it was finished by this morning. That's a pretty typical thing for me-- reading books in the matter of hours. My desire is to now own the second book in the series. My problem: there is absolutely no way I am walking in Barnes & Noble today. My ankle-- the ankle I feel I could rant about all day long-- is out of place. Usually, I could deal with the pain. It's kind of like sucking through a really thin straw. It takes a while; it leaves you breathless, but eventually the liquid sloshing in the cup (or in my case, the pain in my ankle) is forgotten. Unfortunately, the pain insists on shooting up into my knee and hip. So, here I am, stuck on my spot in my chair waiting to catch a break. Does anyone have an extra one I can borrow?
Saturday, July 16, 2011
I never thought I'd be sharing my story...
Hi! My name is Aryanna. I'm 15 years old and completely new to this blogging thing. I have a life long syndrome called Ehlers-Danlos (EDS). Here's the basic layout of it: My joints are too loose. I have "faulty collagen" as the doctors like to say. This means that my joints don't stay where they are supposed to. As a result, every single one of my joints dislocate-- or come out of place. You can probably imagine how painful it is when your shoulder dislocates from merely moving it. It isn't a fun syndrome to have. I look perfectly "normal" on the outside. Unfortunately, this causes disbelief from many people-- including doctors. Although EDS is a (literal) pain in the neck...I survive. I have many goals that I want to achieve. That's what I've decided to base this blog on. So please continue to read as I share my goals with you. Some goals I know I'll never be able to reach. Some I am so close to accomplishing, I can taste it on my tongue. EDS is a huge weight to carry but it cannot crush me, because I can lift it.
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