Tuesday, August 2, 2011

Choices

Today I was looking at college websites. As I sat pondering about my future, three ideas bubbled to the surface.
One: I want to be a social worker. A good, reliable choice for me. I love helping people and my goal would be to work with those who go through chronic pain-- a topic I can relate to. I had it all planned. What school was best, how many years I would go, where I would work. Extremely reliable plan.
Two: My dream career-- to be a writer. There is a fantastic creative writing program at a local college. Of course I would love to do that! There's only one problem...what would I do after I acquired my degree? This reoccurring fantasy I have managed to conjure up in my head is that I'd be an author. It's a long shot, I'll give you that. However, that's my dream. Who knew it could actually be in reach?
Three: The ideal, amazing job for a person living with EDS. Being a sign language interpreter. I've always been interested in sign language but I didn't know how to teach myself. I only know a few things. The alphabet, how to count to ten, random introductory phrases (such as, "My name is Aryanna. What's your name?" or "Nice to meet you" and "How are you?") and a bunch of nouns that have no relation to one another. There is also a great ASL program at the same local college with the creative writing one! It's ideal for EDS because I could take an interpreting job whenever I choose. If I'm having a bad day, it's entirely up to me. Right?
Sigh.
So you see my problem. For now, I'll just sort through my options. I still have two years until college. Yikes.

Sunday, July 17, 2011

My goal for today:

My goal for today was to drag myself away from the amazing book I had the pleasure of reading. I bought the book late afternoon yesterday, and it was finished by this morning. That's a pretty typical thing for me-- reading books in the matter of hours. My desire is to now own the second book in the series. My problem: there is absolutely no way I am walking in Barnes & Noble today. My ankle-- the ankle I feel I could rant about all day long-- is out of place. Usually, I could deal with the pain. It's kind of like sucking through a really thin straw. It takes a while; it leaves you breathless, but eventually the liquid sloshing in the cup (or in my case, the pain in my ankle) is forgotten. Unfortunately, the pain insists on shooting up into my knee and hip. So, here I am, stuck on my spot in my chair waiting to catch a break. Does anyone have an extra one I can borrow?

Saturday, July 16, 2011

I never thought I'd be sharing my story...

Hi! My name is Aryanna. I'm 15 years old and completely new to this blogging thing. I have a life long syndrome called Ehlers-Danlos (EDS). Here's the basic layout of it: My joints are too loose. I have "faulty collagen" as the doctors like to say. This means that my joints don't stay where they are supposed to. As a result, every single one of my joints dislocate-- or come out of place. You can probably imagine how painful it is when your shoulder dislocates from merely moving it. It isn't a fun syndrome to have. I look perfectly "normal" on the outside. Unfortunately, this causes disbelief from many people-- including doctors. Although EDS is a (literal) pain in the neck...I survive. I have many goals that I want to achieve. That's what I've decided to base this blog on. So please continue to read as I share my goals with you. Some goals I know I'll never be able to reach. Some I am so close to accomplishing, I can taste it on my tongue. EDS is a huge weight to carry but it cannot crush me, because I can lift it.